The #MillionsMissing. Read it and weep.
#MissingMillions is a social media campaign to raise awareness of the estimated millions of people who are missing from society because there is so little funding into ME/CFS research. Current NICE guidelines recommend graded exercise therapy. At worst this has caused disability. At best it has set patients back months, sometimes years. Our personal experience of this was when our son Ryan was diagnosed with Chronic Fatigue Syndrome in 2009. He was 13 at the time. Thankfully we found a Dr and physio who understood the illness. 18 months later he was fully recovered, after doing the very opposite of current NICE guidelines. He's now 22 and just completed a degree in Sports Coaching & Science. The irony isn't lost on us. ME is not a popular illness. Don't misunderstand me, no illness is popular. But ME was christened 'yuppy flu' in the 80's. I've heard it called the 'Pull yourself together disease'. Can you imagine how th...