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Showing posts from May, 2016

The #MillionsMissing. Read it and weep.

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#MissingMillions is a social media campaign to raise awareness of the estimated millions of people who are missing from society because there is so little funding into ME/CFS research. Current NICE guidelines recommend graded exercise therapy. At worst this has caused disability. At best it has set patients back months, sometimes years. Our personal experience of this was when our son Ryan was diagnosed with Chronic Fatigue Syndrome in 2009. He was 13 at the time. Thankfully we found a Dr and physio who understood the illness. 18 months later he was fully recovered, after doing the very opposite of current NICE guidelines. He's now 22 and just completed a degree in Sports Coaching & Science. The irony isn't lost on us. ME is not a popular illness. Don't misunderstand me, no illness is popular. But ME was christened 'yuppy flu' in the 80's. I've heard it called the 'Pull yourself together disease'. Can you imagine how th

Five Minute Friday: Grow

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I watch with bated breath every spring. But this one? This one was different. It had been uprooted from where it had grown for 13 years. A new home. New life. Different county. Different soil. Different world. Would it even survive the upheaval? Today it is flowering, 10 months on. More than that it's flourishing in it's new environment. Greater buds and blooms than ever before. Signs of growth. Of new roots being established. It was a precious cargo containing memories of lives and loves. A thing of beauty. Hardier than it appeared at first glance. Bringing joy Peace Blessing Promise. Thank you God for new beginnings. For a place to settle. For a world in which we love and are loved. May I trust your heart when I don't understand your plan. Now and for ever. Chris's parents bought us this chamellia Its simple beauty brings me hope. It blooms every year about this time.